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Those living with MS can self-advocate by being educated about their rights. Learners should know what they need in order to perform to the best of their capabilities and then to insure that those around them (if they desire to share) know as well. If special accommodations are needed but not made available, the learner needs to request, or in some cases demand, them.
The National Multiple Sclerosis Society has chapters in all 50 states. According to the website, “We help each person address the challenges of living with MS through our 50-state network of chapters. The Society helps people affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward”. The MS Society organizes yearly events that help to raise research funding and MS awareness.
Elizabeth Jameson quit her law job when she became diagnosed with MS. She now makes her career as a painter often basing works off of MRI scans. Jason DaSilva is a filmmaker that was diagnosed in 2005. He has since received an Oscar qualification and has had films featured on both HBO and PBS. Mark Parsons is a sculptor from Brooklyn, living with MS.

Elizabeth Jameson

Mark Parsons
Because MS sufferers often experience fatigue, it is essential that said students have the ability to rest at any time. By incorporating easels that can be accessed from a chair, students can participate in activities without standing for long periods of time. Allow the student to have water at their desk, give time for stretching to avoid spasms, provide unlimited bathroom visits, and seat student near cool source on hot days in order to avoid fatigue. Some MS sufferers have wheelchairs; therefore the tables in the classroom must provide clearance for the person’s legs. Also, allow for students to tape record sessions or assign a scribe to take notes for the class, if needed.
Symptoms generally associated with this disease include: fatigue, numbness, walking/balance/coordination problems, bladder dysfunction, bowel dysfunction, vision problems, dizziness, sexual dysfunction, pain, emotional changes, depression, and spasticity. These symptoms also range from temporary to permanent.
Currently, 400,000 Americans are living with MS, as well as 2.1 million people worldwide.
Women are three times more likely than men to be diagnosed with the disease.
The human body has nerve fibers in the central nervous system that are covered with a fatty layer, known as the myelin sheath. In patients effected by MS, the myelin sheath is damaged, exposing and resulting in damage to the nerve fiber within. Because of these damages, nerve impulses traveling to or from the brain or spinal cord are interrupted and distorted; resulting in symptoms ranging from numbness to paralysis.
Hello all, my name is Ashton.
I am currently an art education student at The Ohio State University.
For my ARTED608 class, we are to choose a disability to advocate for.
Because of my experiences in life, I chose the topic of Multiple Sclerosis.
The posts that follow will include tips for accommodation, general information about MS, and lesson adaptations.
Feel free to post your comments.
This is a learning experience for me and any information or ideas that you are willing to share will serve as a valuable tool in my journey.